06
Mar
15

Informed

Well the family are now informed , I told little sister on Monday. I went to tell big sister the other night but they had visitors, so I went over there this afternoon and told her. Of the family she was the one who I worried would tumble to my condition and once I told her she went it’s obvious. She works with ABI and worked with theĀ  elderly and has experience with Parkinson’s and she said what she’d noticed the covering of the trembling hand, the pain, the gait change (well shoe wear), the sweating. I tick almost all the symptom boxes for Parkinson’s (unfortunately).

This weekend I’m off to Eildon with the parents, and I’m going to be grilled they’ve had a week to adjust to the news. Above all I know have my family’s love and support, and as well the support of my friends online

28
Feb
15

Outed

I made the decision last night, I would tell. So this morning I told Dad and he took it hard, then I told Mum who also felt the hit. I’m sorry to burden them with the news but they needed to know what was going on as something obviously was.

EDIT

I’m sorry I know it’s not my fault but really it’s on my shoulders it is my crown of thorns, my friends online have helped.

08
Feb
15

Oops

I gave the family (well my older sister and husband) a scare today. I didn’t charge my phone over night so I put it on charge in the morning and left it in the bedroom and didn’t hear it and as I normally always have my phone with me they thought the worst. So my sister came over, I gave her a wine and it’s all OK. She was worried I’d had a fall, falls don’t worry me I can break fall easily I’ve even realised that’s what I need to do mid fall, that and I’m going back to Aikido training.

But it points out they know I’m not well.

31
Jan
15

Pain

I woke up early Thursday in a fair bit of pain enough to make me take my anti inflams (they interfere with blood pressure meds) and more when I went to get up. Getting up that’s the hard part my ankle hurt to much when I put weight on it, so I grabbed a sword used that as a crutch to get to the other end of the house to the walking stick (far more suited to the task). I don’t now how the anti inflams work (they were prescribed for gout) but they do, by lunchtime I could walk on it, today it’s still sore but ignorable.

19
Jan
15

To Do or Not

It’d be a relief to come clean, so much weight lifted. But that only shifts the weight, I can carry it.

24
Dec
14

Confirmation

Well I saw the neurologist this morning, and the diagnosis is confirmed. The MRI shows no strokes or other brain changes which is good, the liver needs a break so the AFD are staying. I’ve also got a new drug to take once a day and my dosage for the Madopar is the same with permission to take a bit extra if I feel I need it.

It looks like the person in charge of my treatment is me. I’m pretty well informed from the net about it and the neurologist is happy with my knowledge and ability to deal with it. So just the sort of news to start the holiday season with.

21
Dec
14

Something New

Well the right knee and foot haven’t been good. More accurately mechanically the joints are fine but the feedback is screwed so it feels like they are not going to hold, so even though my knee can hold me up it will not because the feed back says it won’t. Catch 22 any one.

My right calf seems to have joined my left arm’s union it’s stiff and I can’t relax it. I can sit and feel the give in the left calf yet the right remains stiff. At least the specialist appointment is soon. More questions to ask.




Follow

Get every new post delivered to your Inbox.