One of my best friends called in, it’d been a few days since I’d told him. Time to adjust understandable and accepted. It was nice to enjoy a few beers with him and be open about my condition.
Well that went well. It was a good weekend away, I explained my condition and symptoms to my parents and we agreed to the outcome. And, it’s a big and I’ve given the parent’s access to the blog something I said I wouldn’t do.
I know I’m ill the little sister invited me to dinner
Well the family are now informed , I told little sister on Monday. I went to tell big sister the other night but they had visitors, so I went over there this afternoon and told her. Of the family she was the one who I worried would tumble to my condition and once I told her she went it’s obvious. She works with ABI and worked with the elderly and has experience with Parkinson’s and she said what she’d noticed the covering of the trembling hand, the pain, the gait change (well shoe wear), the sweating. I tick almost all the symptom boxes for Parkinson’s (unfortunately).
This weekend I’m off to Eildon with the parents, and I’m going to be grilled they’ve had a week to adjust to the news. Above all I know have my family’s love and support, and as well the support of my friends online
I made the decision last night, I would tell. So this morning I told Dad and he took it hard, then I told Mum who also felt the hit. I’m sorry to burden them with the news but they needed to know what was going on as something obviously was.
I’m sorry I know it’s not my fault but really it’s on my shoulders it is my crown of thorns, my friends online have helped.
I gave the family (well my older sister and husband) a scare today. I didn’t charge my phone over night so I put it on charge in the morning and left it in the bedroom and didn’t hear it and as I normally always have my phone with me they thought the worst. So my sister came over, I gave her a wine and it’s all OK. She was worried I’d had a fall, falls don’t worry me I can break fall easily I’ve even realised that’s what I need to do mid fall, that and I’m going back to Aikido training.
But it points out they know I’m not well.
I woke up early Thursday in a fair bit of pain enough to make me take my anti inflams (they interfere with blood pressure meds) and more when I went to get up. Getting up that’s the hard part my ankle hurt to much when I put weight on it, so I grabbed a sword used that as a crutch to get to the other end of the house to the walking stick (far more suited to the task). I don’t now how the anti inflams work (they were prescribed for gout) but they do, by lunchtime I could walk on it, today it’s still sore but ignorable.
It’d be a relief to come clean, so much weight lifted. But that only shifts the weight, I can carry it.